GREGoRi Data Coordination and Outreach Center (U01, Clinical Trials Not Allowed)

The National Institutes of Health (NIH) is seeking applications for the GREGoRi Data Coordination and Outreach Center. The purpose of this Notice of Funding Opportunity is to establish a Data Coordination and Outreach Center that will act as the central point of coordination for the GREGoRi Research Program. The center will be responsible for ensuring that the data, metadata, computational tools, and other resources developed as part of GREGoRi are made available to the broader research community. • The GREGoRi initiative aims to accelerate a paradigm shift in rare disease diagnosis by reimagining the tools, molecular technologies, and analytical approaches used to identify the causal gene(s) and/or variant(s) underlying rare genetic disorders. • The Data Coordination and Outreach Center will work closely with the other members of the GREGoRi Research Consortium and with NIH staff to achieve the goals of the GREGoRi initiative. • The center will be responsible for creating a transition plan to ensure that valuable data, products, and resources remain available to the research community if the award recipient withdraws, the award is terminated, or the project is transferred due to a subsequent competition. • The center will also be required to submit a Data Management and Sharing Plan and annual Research Performance Progress Reports.